Quelle planification anticipée des soins pour les personnes malades d’Alzheimer ?

Since 2009, the King Baudouin Foundation has been working to improve the quality of life and autonomy of people with dementia. From 2013 to 2014, it has financed 12 pilot-projects implementing Advance Care Planning (ACP) in different settings. As a part of the research team following the projects, we present the lessons learned and follow two objectives. We first describe the large variety of ACP approaches through the presentation of two ideal-types: ACP in the strict sense as a standardised process, concerning end of life medical decisions and producing a legally binding document; ACP in the broad sense as a dialogue process focusing on life story, existential values and every day needs and desires, not necessarily documented. We then confront the result of our action-research with the European ACP literature, in order to question the interest of different ways of conceiving ACP for people with dementia. Opening this debate is important in a time when the right to consent for people with dementia is trying to be implemented in these ACP procedures.