Quelle planification anticipée des soins pour les personnes malades d’Alzheimer ?

Translated title of the contribution: Which Advance Care Planning for People with Dementia?

Natalie Rigaux, Sylvie Carbonnelle

Research output: Contribution to journalArticlepeer-review

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Abstract

Since 2009, the King Baudouin Foundation has been working to improve the quality of life and autonomy of people with dementia. From 2013 to 2014, it has financed 12 pilot-projects implementing Advance Care Planning (ACP) in different settings. As a part of the research team following the projects, we present the lessons learned and follow two objectives. We first describe the large variety of ACP approaches through the presentation of two ideal-types: ACP in the strict sense as a standardised process, concerning end of life medical decisions and producing a legally binding document; ACP in the broad sense as a dialogue process focusing on life story, existential values and every day needs and desires, not necessarily documented. We then confront the result of our action-research with the European ACP literature, in order to question the interest of different ways of conceiving ACP for people with dementia. Opening this debate is important in a time when the right to consent for people with dementia is trying to be implemented in these ACP procedures.

Translated title of the contributionWhich Advance Care Planning for People with Dementia?
Original languageFrench
Pages (from-to)121-133
Number of pages13
JournalGérontologie et Société
Volume39
Issue number3
DOIs
Publication statusPublished - 2017

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