TY - JOUR
T1 - Patients’ preferences for fracture risk communication
T2 - the Risk Communication in Osteoporosis (RICO) study
AU - Beaudart, Charlotte
AU - Sharma, Mitali
AU - Clark, Patricia
AU - Fujiwara, Saeko
AU - Adachi, Jonathan D.
AU - Messina, Osvaldo D.
AU - Morin, Suzanne N.
AU - Kohlmeier, Lynn A.
AU - Sangan, Caroline B.
AU - Nogues, Xavier
AU - Cruz-Priego, Griselda Adriana
AU - Cavallo, Andrea
AU - Cooper, Fiona
AU - Grier, Jamie
AU - Leckie, Carolyn
AU - Montiel-Ojeda, Diana
AU - Papaioannou, Alexandra
AU - Raskin, Nele
AU - Yurquina, Leonardo
AU - Wall, Michelle
AU - Bruyère, Olivier
AU - Boonen, Annelies
AU - Dennison, Elaine
AU - Harvey, Nicholas C.
AU - Kanis, John A.
AU - Kaux, Jean François
AU - Lewiecki, E. Michael
AU - Lopez-Borbon, Oscar
AU - Paskins, Zoé
AU - Reginster, Jean Yves
AU - Silverman, Stuart
AU - Hiligsmann, Mickaël
N1 - Publisher Copyright:
© The Author(s) 2023.
PY - 2023/11/13
Y1 - 2023/11/13
N2 - Summary: The RICO study indicated that most patients would like to receive information regarding their fracture risk but that only a small majority have actually received it. Patients globally preferred a visual presentation of fracture risk and were interested in an online tool showing the risk. Purpose: The aim of the Risk Communication in Osteoporosis (RICO) study was to assess patients’ preferences regarding fracture risk communication. Methods: To assess patients’ preferences for fracture risk communication, structured interviews with women with osteoporosis or who were at risk for fracture were conducted in 11 sites around the world, namely in Argentina, Belgium, Canada at Hamilton and with participants from the Osteoporosis Canada Canadian Osteoporosis Patient Network (COPN), Japan, Mexico, Spain, the Netherlands, the UK, and the USA in California and Washington state. The interviews used to collect data were designed on the basis of a systematic review and a qualitative pilot study involving 26 participants at risk of fracture. Results: A total of 332 women (mean age 67.5 ± 8.0 years, 48% with a history of fracture) were included in the study. Although the participants considered it important to receive information about their fracture risk (mean importance of 6.2 ± 1.4 on a 7-point Likert scale), only 56% (i.e. 185/332) had already received such information. Globally, participants preferred a visual presentation with a traffic-light type of coloured graph of their FRAX® fracture risk probability, compared to a verbal or written presentation. Almost all participants considered it important to discuss their fracture risk and the consequences of fractures with their healthcare professionals in addition to receiving information in a printed format or access to an online website showing their fracture risk. Conclusions: There is a significant communication gap between healthcare professionals and patients when discussing osteoporosis fracture risk. The RICO study provides insight into preferred approaches to rectify this communication gap.
AB - Summary: The RICO study indicated that most patients would like to receive information regarding their fracture risk but that only a small majority have actually received it. Patients globally preferred a visual presentation of fracture risk and were interested in an online tool showing the risk. Purpose: The aim of the Risk Communication in Osteoporosis (RICO) study was to assess patients’ preferences regarding fracture risk communication. Methods: To assess patients’ preferences for fracture risk communication, structured interviews with women with osteoporosis or who were at risk for fracture were conducted in 11 sites around the world, namely in Argentina, Belgium, Canada at Hamilton and with participants from the Osteoporosis Canada Canadian Osteoporosis Patient Network (COPN), Japan, Mexico, Spain, the Netherlands, the UK, and the USA in California and Washington state. The interviews used to collect data were designed on the basis of a systematic review and a qualitative pilot study involving 26 participants at risk of fracture. Results: A total of 332 women (mean age 67.5 ± 8.0 years, 48% with a history of fracture) were included in the study. Although the participants considered it important to receive information about their fracture risk (mean importance of 6.2 ± 1.4 on a 7-point Likert scale), only 56% (i.e. 185/332) had already received such information. Globally, participants preferred a visual presentation with a traffic-light type of coloured graph of their FRAX® fracture risk probability, compared to a verbal or written presentation. Almost all participants considered it important to discuss their fracture risk and the consequences of fractures with their healthcare professionals in addition to receiving information in a printed format or access to an online website showing their fracture risk. Conclusions: There is a significant communication gap between healthcare professionals and patients when discussing osteoporosis fracture risk. The RICO study provides insight into preferred approaches to rectify this communication gap.
KW - Fracture
KW - FRAX®
KW - Osteoporosis
KW - Patient-healthcare professional communication
KW - Risk communication
KW - Shared decision-making
KW - Visual aids
UR - http://www.scopus.com/inward/record.url?scp=85176450438&partnerID=8YFLogxK
U2 - 10.1007/s00198-023-06955-9
DO - 10.1007/s00198-023-06955-9
M3 - Article
AN - SCOPUS:85176450438
SN - 0937-941X
VL - 35
SP - 451
EP - 468
JO - Osteoporosis International
JF - Osteoporosis International
IS - 3
ER -
