@inbook{e958b3c1ce624e99800403c95eff86b8,
title = "Which Rights for Which Subjects? Genetic Confidentiality and Privacy in the Post-Genomic Era.",
abstract = "The aim of the present chapter is to elucidate the paradoxical position of the individual legal subject in the context of human genetics. It first discusses the assumed individual {"}right to know{"} and {"}right not to know{"} about genetic susceptibilities, predispositions and risks when genetic tests exist, and assess the usual assumption according to which more information necessarily increases liberty and enhances autonomy. A second section is dedicated to the issues of confidentiality, intra-familial disclosure and familial management of genetic information. The idea is suggested that those issues challenge the fundamental liberal unit of the individual traditionally understood as a stable, unitary, embodied entity. ",
keywords = " intra-familial disclosure and management of genetic information; Consent issues in the context of biobanks; Critical assessment of the liberal conception of the individual., Genetic tests; Right to know and not to know; Confidentiality",
author = "Antoinette Rouvroy",
note = "Publication editors : Information Science Reference",
year = "2008",
language = "English",
isbn = "978-1-60566-000-4",
series = "Information Science Reference",
publisher = "Information Science Reference (an imprint of IGI global)",
number = "II",
pages = "454--473",
editor = "Information Science",
booktitle = "Handbook of Research in Technoethics",
}