Which Rights for Which Subjects? Genetic Confidentiality and Privacy in the Post-Genomic Era.

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Résumé

The aim of the present chapter is to elucidate the paradoxical position of the individual legal subject in the context of human genetics. It first discusses the assumed individual "right to know" and "right not to know" about genetic susceptibilities, predispositions and risks when genetic tests exist, and assess the usual assumption according to which more information necessarily increases liberty and enhances autonomy. A second section is dedicated to the issues of confidentiality, intra-familial disclosure and familial management of genetic information. The idea is suggested that those issues challenge the fundamental liberal unit of the individual traditionally understood as a stable, unitary, embodied entity.
langue originaleAnglais
titreHandbook of Research in Technoethics
rédacteurs en chefInformation Science
Lieu de publicationHershley & New York
EditeurInformation Science Reference (an imprint of IGI global)
Pages454-473
Nombre de pages20
ISBN (imprimé)978-1-60566-000-4
Etat de la publicationPublié - 2008

Série de publications

NomInformation Science Reference
nombreII

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